Cannan's Kidney Krew: UPDATE

UPDATE July 17, 2013:

 

 

 

 

 Update July 14, 2013:

 

 

UPDATE May 30, 2013:

Update from Cannan's Kidney Krew:
"We did not get the kidney as it went to the first person on the list! I am very happy for them! Please pray for that individual that they have a speedy recovery and the kidney is not rejected! So happy there are people out there who give life to others when they are called home! Cannan will get dialysis today and tomorrow and then we are busting outta this place! Home for the weekend and return on Monday for outpatient dialysis! Thanks for the thoughts and prayers! Much love to all our "Krew" " Amy Littrell Pytlinski                                     May 30, 2013 at 2:13 PM

Update May 30, 2013: Cannan has been getting increasingly tired and symptomatic over the past few weeks. We had labs done last Friday and his renal function is getting worse... like really bad. We decided at that point it was time to restart dialysis! We were admitted last night for pre-op testing and he had surgery today to get his dialysis access placed and dialysis will start tomorrow. He will have outpatient dialysis every Monday, Wednesday and Friday until transplant....... so when is that?? Well, here goes the whirlwind! As you all know, I (Amy) cannot donate because I have to many arteries going to my kidneys (very weird and not common).. so Todd was worked up to be the donor! Guess what... he is weird too.... he has more arteries than normal as well! GooGoo (Amy's mom) was next on the list... she can't donate because she has 62 year old kidneys and they want a young lively organ for our young lively little boy! The doctors reviewed Todd's testing and decided last night they would take his left kidney after all! All the while, Cannan is on the transplant waiting list! So this morning we wake up and get the news that there is a kidney available and we are 3rd on the list to get it! They will do testing on the 2 patients ahead of us and if they can't get the organ we can take it! YAY!! Is your head spinning yet cause mine sure as hell has been when I found all this out in a matter of 12 hours!

So here's the plan:

1. I have signed consents for transplant surgery and he is completely ready to go if we get the kidney! We will know by tomorrow morning! We are either starting dialysis tomorrow or getting a transplant!
2. If we do not get the organ tomorrow, we are scheduling surgery for end of June/beginning of July and Todd will donate his left kidney.... what an awesome thing for father/son to share!

What can you do?

1. Pray! Pray for the family that has lost a loved one who is providing a better life to the many organ recipients who will receive the organs!
2. Pray for the physicians/transplant teams and other patients/families who need the organ! While I hope that this is the answer we need to make our son feel better, I also understand that there are 2 other people who are eligible for this organ! I want to make sure it goes to the best possible recipient, even if it isn't Cannan!

Sorry for the long update and I'll try to do my best to keep everyone updated more frequently! Until then.. thanks for the thoughts and prayers! Cannan is resting peacefully... me not so much! Can't wait to see what tomorrow brings!

Much love,
Amy

Amanda Littrell Church

Please pray for my nephew, Cannon, & family! They're going through a lot right now!

About Cannan:

Cannan is the great-grandson of Red and Louis Littrell, and the grandson of Fred & Faye Littrell. 

“Cannan, at the young age of 3, got e. coli poisoning which ultimately led to permanent kidney failure.  We spent over 5 weeks at Cardinal Glennon Children's Medical Center at which time we started hemodialysis.  While we are blessed in more ways than imaginable, Cannan's kidneys are not rebounding as we had hoped for.... we heard those very scary words; "He needs a kidney transplant."  We are adjusting to our new life (Cannan is such a trooper) of a restricted diet, tons of medicine, and preparations for a transplant, however if we can make a small difference in the lives of both children and adults living with this horrible disease we are going to try!!  “

Cannan's Kidney Krew: 2013 St. Louis Kidney Foundation Walk (4-27-2013)

You can share your prayers and best wishes using the ‘comment/ No comments’ link below, and/or at the Cannan’s Kidney Krew Facebook page (click here) GlennDL